Tracking Lynch syndrome patients in Sweden

Karolinska Institutet in Stockholm, Sweden, is one of the world's leading medical universities. It accounts for over 40 per cent of the medical academic research conducted in Sweden and offers the country's broadest range of education in medicine and health sciences.

It holds records of about half the country’s patients with Lynch syndrome. Every month, they add around another 20 individuals from previously diagnosed cases, along with five new cases.

Their Lynch syndrome records have been replicated in Imosphere’s data capture module, Atmoforms, and clinicians involved in the treatment of patients also enter data directly into the system as new activity occurs.

The department now has access to digital information relating to:

• Demographics
• Background medical history and diagnostic data
• Test data
• Quality of life data

The data automatically finds its way into Atmolytics. This enables clinicians and researchers to track patient characteristics, progress, quality of life and other outcomes without any formal technical involvement.